Accelerating research for TTC19

Get involved

Research needs more than researchers.

Families, supporters, scientists, businesses and funders can all help create momentum around TTC19.

Fundraising & events

Challenges people remember.

Our campaigns are designed to raise funds, build awareness and introduce TTC19 to communities that may never otherwise encounter this ultra-rare disease.

01

Green the Game for Mito

A community Pokémon GO awareness challenge for Light Up for Mito on 19 September.

How to take part →
02

Paint It Green for TTC19

A simple World Mitochondrial Disease Week awareness activity for families, schools and communities.

How to take part →
03

Halloween: Meet the Dinosaurs

A dinosaur experience raising funds and awareness for TTC19.

Preview →
04

Lowestoft → Newcastle

A major long-distance TTC19 fundraising journey currently in development.

Preview →
05

The Grinch on the Mountain

A Christmas mountain challenge designed to turn a memorable visual into awareness and donations.

View challenge →
Green the Game for Mito. Pokémon GO community awareness challenge

Awareness campaign • 19 September 2026

Green the Game for Mito.

On 19 September, we are asking Pokémon GO players to help turn the game green for mitochondrial disease awareness during Light Up for Mito.

Take part by turning a Pokémon GO gym green or choosing a green buddy Pokémon, then share a screenshot using #LightUpForMito and #CureMito. It is a simple community-led challenge designed to make mitochondrial disease visible in a space families already enjoy together.

DATE19 September 2026
TAKE PARTGreen gym or green buddyThen share a screenshot.
PURPOSEMito awarenessWith optional support for TTC19 research.
Paint It Green for TTC19 World Mitochondrial Disease Week awareness poster

World Mitochondrial Disease Week • September 2026

Paint It Green for TTC19.

A simple community awareness activity that anyone can take part in.

Paint a rock green, add #GreenForTTC19, place it somewhere in your community and share a photo with us. Families, schools, community groups and supporters can all help make TTC19 more visible during World Mitochondrial Disease Week.

TAKE PARTPaint a rock greenAdd #GreenForTTC19.
SHAREPost a photoUse #LightUpForMito too.
PURPOSEAwareness and communityHelp more people discover TTC19.
Meet the Dinosaurs, Halloween TTC19 fundraiser

Upcoming fundraiser • Halloween 2026

Meet the Dinosaurs.

This Halloween, dinosaurs are joining the TTC19 mission for a special fundraising and awareness experience.

The event will use the reach and spectacle of The Dino Squad to introduce more families to TTC19 Research Initiative while raising support for the research programme.

More details coming soon: venue, date, timings and booking information will be announced once plans are confirmed.
Lowestoft to Newcastle TTC19 fundraising challenge teaser

Major fundraising challenge • In development

Lowestoft → Newcastle.

One epic journey. One urgent mission.

We are developing a major long-distance fundraising challenge connecting Lowestoft with Newcastle, a city closely linked with specialist mitochondrial medicine and the TTC19 story. The route, format, dates and support plan are still being finalised.

Full details coming soon. We will publish the confirmed route, challenge format, dates and ways to follow or support the journey once planning is complete.
The Grinch has a new mountain to climb at Yr Wyddfa, fundraising for TTC19 in Christmas 2026

Upcoming fundraiser • Christmas 2026

From Mount Crumpit to Yr Wyddfa.

This Christmas, the Grinch is swapping Mount Crumpit for Yr Wyddfa (Snowdon) to raise funds and awareness for TTC19 Research Initiative.

The challenge is deliberately memorable: a full Grinch mountain climb in winter conditions, using the attention around the character and Christmas season to introduce more people to TTC19 and the need for focused research.

LOCATIONYr Wyddfa (Snowdon), Wales
TIMINGChristmas 2026Final climb date will remain weather-dependent for safety.
FUNDRAISINGTTC19 Research InitiativeDonations via our JustGiving crowdfunding page.
Safety first: mountain weather in winter can change rapidly. The final date and route will only go ahead if conditions are appropriate, with the flexibility to move the climb if required.

Affected by TTC19?

We would really like to hear from you.

If you or someone in your family is affected by TTC19, you are welcome to get in touch. Whether you want to connect, share your experience or simply let us know you are out there, we would be pleased to hear from you.

Email hello@ttc19research.org

You do not need to share medical information when you contact us. We will never publish personal or clinical details without permission.